INFORMATION GIVING BY NURSES IN EMPOWERING PARENTS TO CARE FOR CHILDREN WITH CANCER
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Abstract
Background: Parents empowerment involves accessing information, support, resources, and opportunities for parents to optimize the health of the children with cancer, feel meaningful, determine themselves, become competent, and impact their lives. Nurses play a crucial role in educating and training parents to care for their children.
Objective: The purpose of the study was to explore the provision of information by nurses to parents in empowering parents to care for children with cancer based on parents’ perspectives.
Methods: The participants involved in this study were six nurses who served in the treatment room for children with cancer selected by purposive sampling technique. Data collection was carried out by in-depth interview method using semi-structured interview guidelines. Data analysis with stages of analysis according to Colaizzi.
Result: The results of this study found four themes about the provision of information by nurses in empowering parents, namely information provided by nurses, how to provide information, sources of information, and family responses after being given information. providing information nurses to parents, namely information about room rules and facilities, child care while in the hospital and at home, how to provide information that is often provided by nurses, namely verbally, demonstrations, and media, parents' information sources are nurses, doctors, media, and fellow parents with cancer, and parents' responses after being given information are sad and happy.
Conclusion: Nurses need to pay attention to the right time, and the right method, and assess the readiness of parents when providing information so that the information given to parents can be received and understood by parents well.
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References
Aburn, G., M. G. (2014). Education given to parents of children newly diagnosed with acute lymphoblastic leukemia: the parent’s perspective. Pediatric Nursing, 40(5), 243–256.
Ashcraft, L. E., Asato, M., Houtrow, A. J., Kavalieratos, D., Miller, E., & Ray, K. N. (2019). Parent Empowerment in Pediatric Health Care Settings: A Systematic Review of Observational Studies Synthesis of results: We identified six themes within consequences of empowerment: increased parent involvement in daily care, improved symptom management, . Patient, 12(2), 199–212. https://doi.org/10.1007/s40271-018-0336-2.Parent DOI: https://doi.org/10.1007/s40271-018-0336-2
Cresswell, J. W. (2014). Penelitian Kualitatif & Desain Riset. Pustaka Pelajar.
Hill, C., Knafl, K. A., & Santacroce, S. J. (2018). Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review. Journal of Pediatric Nursing, 41, 22–33. https://doi.org/10.1016/j.pedn.2017.11.007 DOI: https://doi.org/10.1016/j.pedn.2017.11.007
Kilicarslan-Toruner, E., & Akgun-Citak, E. (2013). Information-seeking behaviours and decision-making process of parents of children with cancer. European Journal of Oncology Nursing, 17(2), 176–183. https://doi.org/10.1016/j.ejon.2012.03.001 DOI: https://doi.org/10.1016/j.ejon.2012.03.001
Marcus, C. (2014). Strategies for improving the quality of verbal patient and family education: a review of the literature and creation of the EDUCATE model. Health Psychology and Behavioral Medicine, 2(1), 482–495. https://doi.org/10.1080/21642850.2014.900450 DOI: https://doi.org/10.1080/21642850.2014.900450
Narayanan SP, Rath H, Mahapatra S, M. M. (2023). Preparedness toward participation in disaster management: An online survey among dental practitioners in a disaster‑prone region of Eastern India. Journal of Education and Health Promotion, 12(February). https://doi.org/10.4103/jehp.jehp
Panicker, L. (2013). Nurses’ perceptions of parent empowerment in chronic illness. Contemporary Nurse, 45(2), 3548–3577. https://doi.org/10.5172/conu.2013.3548 DOI: https://doi.org/10.5172/conu.2013.3548
Perry, S. E., Hockenberry, M. J., Lowdermilk, D.L., Wilson, D. (2014). Maternal Child Nursing Care (Fifth Edit). Elsevier.
Rodgers, C. C., Stegenga, K., Withycombe, J. S., Sachse, K., & Kelly, K. P. (2016). Processing Information After a Child’s Cancer Diagnosis—How Parents Learn: A Report From the Children’s Oncology Group. Journal of Pediatric Oncology Nursing, 33(6), 447–459. https://doi.org/10.1177/1043454216668825 DOI: https://doi.org/10.1177/1043454216668825
Wacharasin, C., Phaktoop, M., & Sananreangsak, S. (2015). Examining the Usefulness of a Family Empowerment Program Guided by the Illness Beliefs Model for Families Caring for a Child With Thalassemia. Journal of Family Nursing, 21(2), 295–321. https://doi.org/10.1177/1074840715585000 DOI: https://doi.org/10.1177/1074840715585000